Research Article - Journal of Drug and Alcohol Research ( 2022) Volume 11, Issue 3
Levels of Stress, Depression and Social Support of People Care Alzheimer Patients
Ercument Erbay*Ercument Erbay, Department of Social Work, Hacettepe University, Turkey, Email: eerbay@hacettepe.edu.tr
Received: 02-Mar-2022, Manuscript No. jdar-22-62662;;Accepted Date: Mar 30, 2022; Editor assigned: 04-Mar-2022, Pre QC No. jdar-22-62662 (PQ); Reviewed: 18-Mar-2022, QC No. jdar-22-62662; Revised: 23-Mar-2022, Manuscript No. jdar-22-62662 (R); Published: 30-Mar-2022, DOI: 10.4303/jdar/236169
Abstract
Alzheimer’s is a challenging disease that harms patients’ relatives psychosocially. Individuals who have been maintaining the patient’s care function from the beginning of Alzheimer’s disease and living under the same roof with the patient have severe psychological problems and have difficulties in dealing with them.
It is not easy to tolerate that the individual you live with does not remember you, cannot perform daily functions, break with work life, cannot find the way to the house where he lives, and eventually becomes dependent on the bed. It is necessary to understand the process of the relatives of the patients correctly and to develop services in this direction.
Keywords
Alzheimer; Caregivers; Stress; Depression; Social Support
Introduction
Alzheimer disease is a very challenging disease for patients and, more importantly, patient relatives with their insidious and progressive structure. For this reason, Alzheimer’s points to an important disease that needs to be addressed with its medical aspects as well as its psychosocial dimension.
The patient’s relative does not know how to adapt to existing conditions after this disease, which leads to a serious change of life, and how to deal with the problems that arise.
The patient’s relative sees that existing coping mechanisms do not work, seek new exit paths, or stop coping and move to a depressed position. However, the fact that caregivers are in economic deprivation is a situation that should be emphasized in particular. While struggling with the course and problems of the disease, dealing with economic problems make the process of coping much more difficult [1-3].
Research’s problem
Alzheimer is a disease that occurs with behavioural and cognitive changes of the person, requiring treatment and care in the future. It is an important process that needs to be addressed in the psychosocial aspect for caregivers [4].
There are lots of researches on Alzheimer, but there is no study examining the levels of stress, depression and social support of those who care for patients with Alzheimer.
Research’s aims
General goal of this research is to examine stress, depression and social support levels of caregivers who nurse patients with Alzheimer. Within the framework of this general objective, functional subgoals have been determined and they have been expressed with question sentences.
1. Is there a relationship between the age of caregiver’s patients with Alzheimer and their stress levels?
2. Is there a relationship between the gender of caregiver’s patients with Alzheimer and their depression levels?
3. Is there a relationship between caregiver’s patients with Alzheimer and their marital status?
4. Is there a relationship between caregiver’s patients with Alzheimer and their social support level?
5. Is there a relationship between caregiver’s patients with Alzheimer and their educational level?
6. Is there a relationship between caregiver’s patients with Alzheimer and the place in which they resided in for the longest period?
7. Is there a relationship between caregiver’s patients with Alzheimer and their family type?
8. Is there a relationship between caregiver’s patients with Alzheimer and their monthly income?
9. Is there a relationship between caregivers’ patients with Alzheimer and their periods of caregiving?
10. Is there a relationship between caregiver’s patients with Alzheimer and their status of receiving psychological support?
Methods
Research’s model
This research was carried out by quantitative research method. The general scanning technique of quantitative research has been used.
Setting up research variables is a scan study because no replacement has been made.
Screening model research, which is based on question asking, is widely used in social service research. The survey used in this context systematically collects data from the participants, thus getting the participants’ ideas about the subject of research.
Research’s sample
Full counting sampling was used in the study. Research was made with the people, who accepted to participate into the research and nursed patients with Alzheimer in Istanbul Lotus Caring Home. 314 caregivers have been reached in this study [5].
Research’s data collection tool
Socio-demographic information form, Perceived Stress and Social Support Scale have been used as data collection tools.
Perceived Stress Scale (PSS)
It has been developed by Cohen, Kamarck and Mermelstein. The PSS, consisting of a total of 14 substances, is designed to measure how stressful certain situations are perceived in a person’s life. Each item has been evaluated according 5-type Likert scale, which ranges from “Never (0)” to “Very frequent (4)”.
In addition to the long form with fourteen items, the PSS has two other forms with 10 and 4 articles respectively. In this study, the reliability and validity of all three forms are tested. PSS items were given in Annex-1 (items reversely scored and items in forms with 10 or 4 items were marked). While PSS-14’s scores range from 0 to 56, PSS-10’s scores range from 0 to 40 and PSS-4’s scores range from 0 to 16. High score points to the excess of one’s stress perception [6].
The multidimensional perceived social support scale
It is an easy to use, short scale that evaluates the adequacy of social support from three different sources as subjective. It is a scale of 12 items. It contains three groups of support, each of which consists of four items. The factor structure reliability and structure passivity of MSPSS’s Turkish form has been generally found to be satisfactory in terms of its use in our country [7].
Beck Depression Inventory (BDE)
To measure symptoms of depression, a 21 point Beck Depression Inventory (BDI) developed by Beck, Rush, Shaw and Emery was used. Each substance shows a sign of depression. BDI, a self-notification tool, is the most widely used depression measurement tool in the whole world. BDI was translated into Turkish by Hisli and his psychometric properties were investigated and found to have sufficient credibility and validity. The responder evaluates 21 signs of depression on a 4-scale scale ranging from 0 to 3. Therefore, the total scores range from 0 to 63, and high points indicate the excess of depression severity. In this study, BDI’s internal cohesion coefficient was calculated as 0.84 [8].
Data collection process
A survey form was first established in the data collection process for patients with Alzheimer patients. Then a preliminary trial was done. Incomprehensible questions and incorrect sentences are corrected to finalize the form.
Then an application was made to Hacettepe non-interventional ethics committee.
Non-interventional ethics committee and the ethics committee permit were received.
Interviews with caregivers for Alzheimer patients were conducted face to face. This process has been more difficult contrary to what was thought, the patient’s relatives have not been very eager to interview [9].
Anaysis of data
Analysis of data was done with the SPSS 22 program and was studied with a 95% confidence level.
The skewness and kurtosis values of scale scores are between -3 and +3, so it is determined that it is suitable for the normal distribution. The availability of scale scores varying by demographic variables was analyzed with t and ANOVA tests from the parametric test techniques. The relationship between scale scores was analyzed by the Pearson correlation test [10].
Results
The proportion of women is 56.1%; The proportion of those between the ages of 51-60 is 28.8%; The proportion of high school or equivalent school graduates is 29.9%; 49.8% of married people; 70.2% of those with children; the proportion of those living in the city for the longest period is 80.4%; the proportion of core family people is 57.6%; 54.4% of those who are balanced with income expense; the proportion of those between 1-5 years of maintenance is 59.5%; the proportion of those receiving psychological support during the process of maintenance is 9.3% (Table 1).
Table 1: Personal Findings.
n | % | ||
---|---|---|---|
Gender | Female | 176 | 56,1 |
Male | 138 | 43,9 | |
Age | 40 and below | 40 | 13,9 |
Age of 41-50 | 46 | 16,0 | |
Age of 51-60 | 83 | 28,8 | |
Age of 61-70 | 54 | 18,8 | |
71 and above | 65 | 22,6 | |
Educational Status | Illiterate | 21 | 9.12 |
Primary school graduate | 38 | 12,1 | |
Secondary school graduate | 53 | 16,9 | |
Graduate of high school or their equivalents | 94 | 29,9 | |
Bachelor | 85 | 27,1 | |
Postgraduate-doctorate | 23 | 7,3 | |
Marital Status | Single | 33 | 10,5 |
Married | 156 | 49,8 | |
Widow | 80 | 25,6 | |
Divorced | 44 | 14,1 | |
Do you have a child? | Yes | 217 | 70,2 |
No | 92 | 29,8 | |
Place in which you lived for the longest term | Countryside | 61 | 19,6 |
City | 251 | 80,4 | |
Family type | Extended family | 132 | 42,4 |
Nuclear Family | 179 | 57,6 | |
Monthly Income | My income is less than my expense | 74 | 23,9 |
My income is equal to my expense | 168 | 54,4 | |
My income is more than my expense | 67 | 21,7 | |
Caring period | 1 year and less | 59 | 20,4 |
1-5 years | 172 | 59,5 | |
5 years and more | 58 | 20,1 | |
Did you get a psychological support during caring period? | Yes | 29 | 9,3 |
No | 282 | 90,7 |
Results of Pearson Correlation Test made to examine the correlation between scale points were given below.
According to the findings, there is positive and weak correlation between Insufficient Perception of Self-Efficacy and Beck Depression Scale (r=,149); negative and weak correlation between Friends and Insufficient Perception of (r=-,140); negative and weak correlation between Special Person and Insufficient Perception of (r=-,162); negative and weak correlation between Social Support Scale Perceived in Multidimensional Way and Insufficient Perception of (r=-,136) (Table 2).
Table 2: Depression Level.
n | % | ||
---|---|---|---|
Depression Level | Minimal depression | 55 | 17,5 |
Mild Depression | 58 | 18,5 | |
Bland Depression | 65 | 20,7 | |
Acute Depression | 136 | 43,3 |
There is negative and weak correlation between Beck Depression Scale and Family (r=-,273); negative and weak correlation between Beck Depression Scale and Friends (r=-,275); negative and weak correlation between Beck Depression Scale and Special Person (r=-,162); negative and weak correlation between Beck Depression Scale and Social Support Perceived in Multidimensional Way (r=-,274).
Social Support Level Perceived in Multidimensional Way affects Perceived Stress Scale on a statistically significant level. When the effect coefficient is examined, it is observed that said effect is negative and significant (b=-0,117; p<0,05).
When these results are examined, it is observed that in the model in which Beck Depression Scale is dependent variable, the effect coefficient of Social Support Level Perceived in Multidimensional Way is 0,290, on the other hand, when the Perceived Stress Scala as a mediating variable is added to model, the effect coefficient decreased to 0,248 (Table 3).
Table 3: Examination of Scale Points in terms of Educational Status.
Educational Status | n | Average | ss | F | p | |
---|---|---|---|---|---|---|
Stress/Perception of Disturbance | Non-school graduates | 21 | 14,90 | 4,48 | 4,908 | ,000* |
Primary school graduate | 38 | 16,61 | 4,23 | |||
Secondary school graduate | 53 | 15,17 | 4,22 | |||
High school or equivalent school graduate | 94 | 14,94 | 3,66 | |||
Bachelor | 85 | 13,24 | 3,98 | |||
Postgraduate –doctorate graduate | 23 | 12,96 | 4,70 | |||
Perceived Stress Scale | Non-school graduates | 21 | 30,52 | 7,08 | 3,314 | ,006* |
Primary school graduate | 38 | 32,21 | 6,28 | |||
Secondary school graduate | 53 | 28,91 | 6,08 | |||
High school or equivalent school graduate | 94 | 29,50 | 6,39 | |||
Bachelor | 85 | 28,66 | 6,81 | |||
Postgraduate-doctorate graduate | 23 | 25,78 | 5,42 | |||
Beck Depression Scale | Non-school graduates | 21 | 35,81 | 12,17 | 20,042 | ,000* |
Primary school graduate | 38 | 28,68 | 13,57 | |||
Secondary school graduate | 53 | 33,60 | 11,17 | |||
High school or equivalent school graduate | 94 | 27,81 | 15,24 | |||
Bachelor | 85 | 18,08 | 12,08 | |||
Postgraduate-doctorate graduate | 23 | 10,17 | 7,18 | |||
Family | Non-school graduates | 21 | 18,38 | 4,94 | 5,532 | ,000* |
Primary school graduate | 38 | 18,42 | 4,32 | |||
Secondary school graduate | 53 | 19,06 | 4,16 | |||
High school or equivalent school graduate | 94 | 18,10 | 5,29 | |||
Bachelor | 85 | 20,81 | 5,62 | |||
Postgraduate-doctorate graduate | 23 | 23,09 | 4,90 | |||
Friends | Non-school graduates | 21 | 17,62 | 5,71 | 4,987 | ,000* |
Primary school graduate | 38 | 17,74 | 5,02 | |||
Secondary school graduate | 53 | 19,11 | 4,14 | |||
High school or equivalent school graduate | 94 | 17,98 | 5,20 | |||
Bachelor | 85 | 20,34 | 5,99 | |||
Postgraduate-doctorate graduate | 23 | 22,74 | 3,53 | |||
Social Support Scale Percieved in Multidimensional Way | Non-school graduates | 21 | 52,90 | 14,51 | 5,248 | ,000* |
Primary school graduate | 38 | 53,66 | 12,56 | |||
Secondary school graduate | 53 | 56,81 | 9,36 | |||
High school or equivalent school graduate | 94 | 53,94 | 14,20 | |||
Bachelor | 85 | 60,39 | 14,92 | |||
Postgraduate-doctorate graduate | 23 | 66,61 | 13,17 |
When the indirect effect of independent variable on dependent variable was analysed in process analysis it was determined that Perceived Stress Scale’s confidence interval did not include 0 (zero) (-0,0822; -0,0119). According to this result, mediation effect of Perceive Stress Scale is significant.
There is a statistically significant difference in stress/ discomfort perception among groups of different ages (p<0.05).
Here are the Results of the ANOVA test for the Study of Scale Scores in Terms of Education Status. There is a statistically significant difference in stress/perception of disturbance among groups with different educational status (p<0,05).
There is a statistically significant difference in terms of Perceived Stress Scale among groups with different educational status (p<0,05). There is a statistically significant difference in family terms (p<0,05) among groups with different educational status.
Here are the Results of the ANOVA test for Reviewing Scale Points in Terms of Marital Status. There is a statistically significant difference between groups with different marital status in terms of Insufficient Perception of Self-Efficacy (p<0.05). Accordingly, the average point of perception of insufficient self-efficacy of single ones is the highest, average point of those who are divorced is the smallest (Table 4).
Table 4: Examination of Scale Points in terms of Marital Status.
Marital Status | n | Average | ss | F | p | |
---|---|---|---|---|---|---|
Insufficent Perception of Self-efficacy | Single | 33 | 16,79 | 5,02 | 2,701 | ,046* |
Married | 156 | 14,67 | 4,83 | |||
Widow | 80 | 14,46 | 4,55 | |||
Divorced | 44 | 13,84 | 4,40 | |||
Perceived Stress Scale | Single | 33 | 32,24 | 6,72 | 3,522 | ,015* |
Married | 156 | 29,01 | 6,80 | |||
Widow | 80 | 29,68 | 6,09 | |||
Divorced | 44 | 27,57 | 5,66 | |||
Beck Depression Scale | Single | 33 | 22,55 | 14,59 | 19,322 | ,000* |
Married | 156 | 20,65 | 12,90 | |||
Widow | 80 | 34,13 | 12,54 | |||
Divorced | 44 | 29,68 | 16,62 |
There is a statistically significant difference in terms of Perceived Stress Scale among groups with different marital status (p<0.05).
Here are the Results of the ANOVA test for reviewing Scale Points in Terms of Monthly Income. There is a statistically significant difference among groups with different monthly income in terms of Stress/Perception of Disturbance (p<0.05). Accordingly, the average point of Stress/Perception of Disturbance for those whose income is more than expense is the highest, while the average point of those whose income is equal to expense is the smallest (Table 5).
Table 5: Examination of Scale Points in terms of Monthly Income.
Monthly Income | n | Average | ss | F | p | |
---|---|---|---|---|---|---|
Stress/Perception of Disturbance | My income is less than my expense | 74 | 15,20 | 4,07 | 3,955 | ,020* |
My income is equal to my expense | 168 | 13,96 | 4,06 | |||
My income is more than my expense | 67 | 15,39 | 4,54 | |||
Perceived Stress Scale | My income is less than my expense | 74 | 29,51 | 6,97 | 4,443 | ,013* |
My income is equal to my expense | 168 | 28,40 | 5,87 | |||
My income is more than my expense | 67 | 31,18 | 7,44 | |||
Beck Depression Scale | My income is less than my expense | 74 | 33,23 | 10,77 | 14,300 | ,000* |
My income is equal to my expense | 168 | 22,79 | 15,22 | |||
My income is more than my expense | 67 | 24,64 | 14,46 | |||
Friends | My income is less than my expense | 74 | 18,51 | 3,86 | 3,131 | ,045* |
My income is equal to my expense | 168 | 19,83 | 5,44 | |||
My income is more than my expense | 67 | 18,15 | 6,12 |
There is a statistically significant difference among groups with different monthly income in terms of Perceived Stress Scale (p<0.05). There is a statistically significant difference among groups with different monthly income in terms of Beck Depression Scale (p<0.05). There is a statistically significant difference among groups with different monthly income in terms of Friends (p<0.05).
Here are the Results of the ANOVA test for reviewing Scale Points in Terms of Caregiving Duration (Table 6).
Table 6: Examination of Scale Points in terms of Caregiving Duration.
Caregiving duration | N | Average | ss | F | p | |
---|---|---|---|---|---|---|
Beck Depression Scale | 1 year and less | 59 | 30,39 | 14,72 | 3,316 | ,038* |
1-5 years | 172 | 26,17 | 14,29 | |||
5 years and more | 58 | 23,74 | 13,77 |
There is statistically significant difference between groups with different caregiving durations in terms of the Beck Depression Scale (p<0.05).
Discussion
The proportion of women is 56.1%; The proportion of those between the ages of 51-60 is 28.8%; The proportion of high school or equivalent school graduates is 29.9%; 49.8% of married people; 70.2% of those with children; the proportion of those living in the city for the longest period is 80.4%; the proportion of core family people is 57.6%; 54.4% of those who are balanced with income expense; the proportion of those between 1-5 years of maintenance is 59.5%; the proportion of those receiving psychological support during the process of maintenance is 9.3%.
The proportion of women is 56.1%; The proportion of those between the ages of 51-60 is 28.8%; The proportion of high school or equivalent school graduates is 29.9%; 49.8% of married people; 70.2% of those with children; the proportion of those living in the city for the longest period is 80.4%; the proportion of core family people is 57.6%; 54.4% of those who are balanced with income expense; the proportion of those between 1-5 years of maintenance is 59.5%; the proportion of those receiving psychological support during the process of maintenance is 9.3%.
Conclusion
When these results are examined, it is observed that in the model in which Beck Depression Scale is dependent variable, the effect coefficient of Social Support Level Perceived in Multidimensional Way is 0,290, on the other hand, when the Perceived Stress Scala as a mediating variable is added to model, the effect coefficient decreased to 0,248. According to the conclusion drawn from these findings, Perceived Stress Scale played a mediatory role.
When the indirect effect of independent variable on dependent variable was analysed in process analysis it was determined that Perceived Stress Scale’s confidence interval did not include 0 (zero) (-0,0822; -0,0119). There is a statistically significant difference between groups of different ages in terms of Insufficient Perception of Self-Efficacy (p<0.05). There is a statistically significant difference in stress/discomfort perception among groups of different ages (p<0.05).
Acknowledgment
None
Conflicts of Interest
No conflict of interest was declared.
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